Please pardon our appearance while we are under construction.

We are currently building a world-wide communication structure, and are looking for FOXG1 parents to step up and assist with data collection and communication. Check out this slideshow for more information; if you’d like to volunteer, please contact Christine at or Jennifer at

If you are new to your FOXG1 Diagnosis, please contact one of our Point of Contact (POCs) to update your information in our contact database.

We have three worldwide regions:

Europe, Middle East and Africa (EMEA), with Christine Revkin as the Regional POC (R-POC)

EMEA Region:

Open positions:

  • Denmark, Israel, Netherlands, Portugal, Slovakia, Turkey

Asia/Pacific (AP)- R-POC position is open to applicants

Open positions:

  • India

Americas, with Jennifer Leonard, R-POC and IFF’s Director of Family Advocacy


The USA has been broken down into six regions:

  • Midwest

    Julie Rognstad, (Ohio, Michigan, Indiana, Illinois, Wisconsin, Missouri, Iowa, Minnesota, North & South Dakota, Nebraska & Kansas)

  • Northeast

    Elisha Hamburger – (Maine, Vermont, New Hampshire, Massachusetts, Connecticut, Rhode Island, New Jersey, New York & Pennsylvania)

  • Rocky Mountains

    Deborah Nettles, (Montana, Wyoming, Colorado, Utah, Nevada & Idaho)

  • Southeast

    Stacey Bumpus, (Delaware, Maryland, Virginia, West Virginia, North & South Carolina, Georgia, Florida, Alabama, Mississippi, Louisiana, Arkansas, Tennessee & Kentucky)

  • Southwest

    Rashaan Hoggard, (Texas, Oklahoma, New Mexico & Arizona)