Share your story
Personal stories build awareness and help newly diagnosed families feel seen.
Review story-submission guidanceJoin the movement
There are meaningful ways to contribute, whether you have an hour, an idea, or a story to share.
Personal stories build awareness and help newly diagnosed families feel seen.
Review story-submission guidanceBring friends and family together around a shared purpose and help fund progress.
Visit the fundraiser pageOffer your skills, energy, or professional perspective to strengthen our community.
Contact the FoundationNovember is FOXG1 Awareness Month, with opportunities to share facts and family stories.
Explore Awareness Month