Families worldwide
Our community brings together people affected by this rare neurological disorder.
International FOXG1 Foundation
Raising awareness, building community, and supporting families affected by FOXG1 syndrome.
Our community brings together people affected by this rare neurological disorder.
Explore resources for everyday life and ways to connect with the Foundation.
Browse family resources and contact the Foundation with your questions.
We are stronger together
From the first questions after diagnosis through the everyday realities of care, the Foundation connects families to practical information, peer support, and a global community.
Explore resources
Find community connections, request forms, and resource updates.
Explore family resources →CommunityWe’re updating the ways you can take part in the FOXG1 community.
Get involved →Give hopeYour gift supports family connection, awareness, and community.
Donate →