Research archive
2016 Family Education & Awareness Conference
The recovered program inventory from the Foundation’s first family education conference.
Archive status
The original page linked to audio, presentation, and document files. This page restores its full inventory, but the files themselves remain offline while each item is reviewed for safety, permissions, and relevance.
Our First Family Education and Awareness Conference was at the Eaglewood Resort and Spa in Itasca, IL., June 24-26, 2016; below are the audio files from this event.
Proud Partners
Presentations and Audio
- Opening remarks Fri 630pm.mp3
- 5212 overview june 2016.pptx
- Benke - 5212 overview june 2016.pdf
- Autonomic Psycholigical and Metabolic Abnormality basic Nuel Sat 1030am.mp3
- Autonomic Psychological Metabolic abnormalities Nuel Sat 330pm.mp3
- BSJohnson_RTTresearch_Chicago2016.pptx
- Behavioural Issues and Management - Kaufmann Saturday 130pm.mp3
- Benke - IFCR COE cdkl5 clinic and SOC june 2016x.pdf
- Brenowitz - ResearchSymposium Brenowitz 2016-v04.pptx
- Occupational Therapy and More - Jeanette Jones.pdf
- Occupational Therapy and More Jones Sat 330pm.mp3
- CDKL5 Getting Involved database and science updates Leonard Muotri Fri 215.mp3
- Cellini - IRSF.pptx
- Communication Getting Started - Lariviere and Erickson Sun 930am.mp3
- Communication Guideline Development Townend Sun 830am.mp3
- Communication Guidelines Development Bartolotta Sun 820am.mp3
- Communicaton Foundation for Writing Norwell Sun 930am.mp3
- Cortical Visual Impairment Mazel Sat 115pm.mp3
- Deon - Treating Spasticity in Rett.pptx
- Emazel sent PPT.pptx
- Emergent Literacy Koppenhaver Sun 930am.mp3
- Epilepsy Basics Paciorkowski Sat 1050am.mp3
- Benke - epilepsy mgmt june 2016.pdf
- Epilepsy Management Benke and Schultz Sat 230pm.mp3
- Feeding and Swallowing Spring Saturday 130pm.mp3
- Feryma - CannabisFamilyConference.ppt
- GI Motility Motil Sat 1110am.mp3
- Glaze - Chicago RSO_NNZ_Neuren June 16 2016_FINAL_rev.pptx
- Guided Reading Norwell and Ahern Sun 1045am.mp3
- IEP Beginning the Journey Ahern Sun 930am.mp3
- Intensive Physical Therapy Hubbard Sat 230pm.mp3
- Kaufmann - NHS RTT5214 Rett Syndrome Symposium June 2016.pptx
- Lane - Pediatric and Adult Preventive Care in Rett Syndrome 2016.pptx
- Life after high school Heydemann and Peters Sunday at 1045a.mp3
- Literacy and Communication Koppenhaver and Erickson Sun830am.mp3
- Medical Cannabis Feyma Sat 415pm.mp3
- Motil - Rett ChicagoA16.ppt
- Moving forward, Transition to Adulthood Barrish Sunday at 930am.mp3
- Nelson - IRSF presentation June 2016 (chicago) - updated template.pptx
- Neul - BiobankingTalk.pptx
- Neul - Clinical trials family.pptx
- Neul - RSO Clinical Trial Update.pptx
- Norwell - FOUNDATIONS TO WRITING.pdf
- Norwell - GUIDED READING SHORT RSO HANDOUTS.pdf
- Nutrition Basics, Growth, Bone Health, Gut Motil Sat 330pm.mp3
- Orthopedics Scoliosis and Joint Contractures Sullivan Saturday 130pm.mp3
- Percy - RSO 2016 Family Meeting.ppt
- Percy - RSO NHS 062416.ppt
- Percy - RSO Thursday evening.ppt
- Protected Tomorrows Ehlert Sun 930am.mp3
- Pulmonary Management Sharma Fri 2pm.mp3
- Rett BCI Final.pptx
- Rett and infantile Spasms AV2-73 Presentation.pdf
- Rettsyndrome.org - Kaminsky Fri 705pm.mp3
- Roberds Rett symposium 2016.pptx
- Services Supporting Child's Communication- Barlotta Sun 130pm.mp3
- Skinner - FamilyConference_Genetics 101_2016.pptx
- genetics 101 Skinner Fri 3pm.mp3
- Spring - Rett 06-24-2016.pptx
- Successful Eye Gaze Trials Lariviere Sun 1045am.mp3
- Tarquinio - QOL talk - RTT meeting 2016_dct.pptx
- Tarquinio - Wearables and Rett syndrome.pptx
- Wearables - Tarquinio Sat 415pm.mp3
- Well child and adult care Lane Sat 10am.mp3
- When Special Education is not working Cohen Sun 1045am.mp3
- Womanhood 2016 Lane Sat 415pm.mp3
- Writing Koppenhaver Sun 1045am.mp3
- Xu-Basic_Science_Session-2016.pptx
- movement disorders Suter Sat 230pm.mp3