Research and discovery

Moving science forward, together.

Families and researchers are essential partners in the search for better understanding and treatments.

Why research is urgent

FOXG1 syndrome remains under-researched. Progress depends on sustained collaboration across families, clinicians, scientists, and funders.

Meet the clinicians and researchers whose published profiles were preserved in the Foundation archive.

Explore the recovered program inventory from the first Family Education and Awareness Conference in 2016.

Help sustain family-centered advocacy and the work needed to turn scientific insight into meaningful outcomes.