Conference Archive
Our First Family Education and Awareness Conference was at the Eaglewood Resort and Spa in Itasca, IL., June 24-26, 2016; below are the audio files from this event.
Proud Partners
Presentations and Audio
- Opening remarks Fri 630pm.mp3
- 5212 overview june 2016.pptx
- Benke – 5212 overview june 2016.pdf
- Autonomic Psycholigical and Metabolic Abnormality basic Nuel Sat 1030am.mp3
- Autonomic Psychological Metabolic abnormalities Nuel Sat 330pm.mp3
- BSJohnson_RTTresearch_Chicago2016.pptx
- Behavioural Issues and Management – Kaufmann Saturday 130pm.mp3
- Benke – IFCR COE cdkl5 clinic and SOC june 2016x.pdf
- Brenowitz – ResearchSymposium Brenowitz 2016-v04.pptx
- Occupational Therapy and More – Jeanette Jones.pdf
- Occupational Therapy and More Jones Sat 330pm.mp3
- CDKL5 Getting Involved database and science updates Leonard Muotri Fri 215.mp3
- Cellini – IRSF.pptx
- Communication Getting Started – Lariviere and Erickson Sun 930am.mp3
- Communication Guideline Development Townend Sun 830am.mp3
- Communication Guidelines Development Bartolotta Sun 820am.mp3
- Communicaton Foundation for Writing Norwell Sun 930am.mp3
- Cortical Visual Impairment Mazel Sat 115pm.mp3
- Deon – Treating Spasticity in Rett.pptx
- Emazel sent PPT.pptx
- Emergent Literacy Koppenhaver Sun 930am.mp3
- Epilepsy Basics Paciorkowski Sat 1050am.mp3
- Benke – epilepsy mgmt june 2016.pdf
- Epilepsy Management Benke and Schultz Sat 230pm.mp3
- Feeding and Swallowing Spring Saturday 130pm.mp3
- Feryma – CannabisFamilyConference.ppt
- GI Motility Motil Sat 1110am.mp3
- Glaze – Chicago RSO_NNZ_Neuren June 16 2016_FINAL_rev.pptx
- Guided Reading Norwell and Ahern Sun 1045am.mp3
- IEP Beginning the Journey Ahern Sun 930am.mp3
- Intensive Physical Therapy Hubbard Sat 230pm.mp3
- Kaufmann – NHS RTT5214 Rett Syndrome Symposium June 2016.pptx
- Lane – Pediatric and Adult Preventive Care in Rett Syndrome 2016.pptx
- Life after high school Heydemann and Peters Sunday at 1045a.mp3
- Literacy and Communication Koppenhaver and Erickson Sun830am.mp3
- Medical Cannabis Feyma Sat 415pm.mp3
- Motil – Rett ChicagoA16.ppt
- Moving forward, Transition to Adulthood Barrish Sunday at 930am.mp3
- Nelson – IRSF presentation June 2016 (chicago) – updated template.pptx
- Neul – BiobankingTalk.pptx
- Neul – Clinical trials family.pptx
- Neul – RSO Clinical Trial Update.pptx
- Norwell – FOUNDATIONS TO WRITING.pdf
- Norwell – GUIDED READING SHORT RSO HANDOUTS.pdf
- Nutrition Basics, Growth, Bone Health, Gut Motil Sat 330pm.mp3
- Orthopedics Scoliosis and Joint Contractures Sullivan Saturday 130pm.mp3
- Percy – RSO 2016 Family Meeting.ppt
- Percy – RSO NHS 062416.ppt
- Percy – RSO Thursday evening.ppt
- Protected Tomorrows Ehlert Sun 930am.mp3
- Pulmonary Management Sharma Fri 2pm.mp3
- Rett BCI Final.pptx
- Rett and infantile Spasms AV2-73 Presentation.pdf
- Rettsyndrome.org – Kaminsky Fri 705pm.mp3
- Roberds Rett symposium 2016.pptx
- Services Supporting Child’s Communication- Barlotta Sun 130pm.mp3
- Skinner – FamilyConference_Genetics 101_2016.pptx
- genetics 101 Skinner Fri 3pm.mp3
- Spring – Rett 06-24-2016.pptx
- Successful Eye Gaze Trials Lariviere Sun 1045am.mp3
- Tarquinio – QOL talk – RTT meeting 2016_dct.pptx
- Tarquinio – Wearables and Rett syndrome.pptx
- Wearables – Tarquinio Sat 415pm.mp3
- Well child and adult care Lane Sat 10am.mp3
- When Special Education is not working Cohen Sun 1045am.mp3
- Womanhood 2016 Lane Sat 415pm.mp3
- Writing Koppenhaver Sun 1045am.mp3
- Xu-Basic_Science_Session-2016.pptx
- movement disorders Suter Sat 230pm.mp3