Our 1st! Family Education and Awareness Conference

Join other FoxG1 families at the conference on June 24-26

Eaglewood Resort and Spa | Itasca, IL

Registration is closed for 2016

Interested in Sponsoring the Event?

Why attend the Conference?

Harnessing the power of collaboration and community. The International Foundation for FOXG1 (IFF) is proud to partner for the first time with Rettsyndrome.org, the International Foundation for CDKL5 Research (IFCR), and MECP2 Duplication in  joint sessions of common relevance, meals, receptions. and respite.

This is the only conference of this caliber where parents and professionals of those with Rett syndrome and Related Disorders come together from all over the world, under one roof. Learn the most current recommended care and advocacy strategies for every stage of life, and hear first-hand the latest in research and clinical trials. Even though many resources today can be accessed online, nothing replaces the experience of meeting face-to-face with experts; hands-on interactions with carefully orchestrated workshops; and spending time developing lasting relationships with other parents and attendees.

Here’s a keynote Welcome from one of the RETT.org past conferences, (in it’s 32 conference year) – a teaser!!
(Just inform your name to access the video)

Program Highlights

  • Expert Sessions on Research, Clinical Trials, Genetics, Medical/Symptom Management, Therapies, Communication, Literacy, School, Adulthood, Quality of Life, Fundraising, and Advocacy
  • Natural History Study session with the Researcher Symposium open to family attendees (Friday)
  • Abilities Expo excursions (Friday and Sunday afternoons)
  • Small Group Meet and Greets
  • Expand Horizons with our Related Disorders
  • Build Lasting Relationships with FOXG1 families, Expert Presenters, and Attendees
  • Celebrations at the Saturday Night Tribute Reception
  • Friday NIght Meet and Greet Social for our families

Speakers and Program

More details on the program coming soon.

Full Registration
Includes session materials, and all meals, refreshments and Tribute Dinner
$309 $340 $375
Single Day Registration: Friday
Includes session,materials, meals and refreshments for this day
$125 $137.50 $150
Friday Night Social (FoxG1 Event)
7:30pm to 9:30pm
Meet the other parents, share stories and experiences.
Single Day Registration: Saturday
Includes session,materials, meals and refreshments for this day and Tribute Dinner
$200 $220 $242
Tribute Dinner
Included with your registration.
Additional tickets for travel companions, friends or family $50
Single Day Registration: Sunday
Includes session,materials, meals and refreshments for this day
$125 $137.50 $150
  • Respite (4-hour block minimums), rate TBD – registration will be posted separately
  • Guests/Travel Companions are welcome to join conference attendees in the restaurant for meals and pay as you go.

Diagnosed children are welcomed guests at meals, the Friday evening Welcome Orientation, and the Saturday Tribute Reception. No children allowed in sessions to maintain fast pace, allow frank discussion and quality audio recordings.

Hotel Room Reservation

We got an amazing rate! Call the Eaglewood Resort Hotel Room Reservation | Call 1-877-285-6150 btw 8am-9pm Central, reference “Family Conference”, $139/night resort fees included. Special room rate cutoff is May 27th.

Please reserve in our Room Block. Although you may find less expensive rates on hotel broker sites, these rates do not include the resort and amenity fees!

Directions to the Hotel

Travel and local information:

Helping Hands Keepsake Journal

Submit by May 26th for the Rett Syndrome Yearbook. Place your message of Hope, advertise a business, make a Tribute to your child or grandchild for all to treasure. Electronic version will be posted to the Rett website after the conference.