One of the characteristics of FOXG1 is Cortical Visual Impairment (CVI). Unlike low vision, CVI is a neurological condition affecting the eyes – the structure of the eyes is fine, but there is an issue with the way the brain receive and processes the input from the eyes. It is very beneficial to your child to treat them for CVI and not just low vision. We have seen many cases where by using the right therapy methods, the child’s CVI has improved dramatically. The leading expert in CVI is Dr. Christine Roman-Lantzy. This website is a great resource for understanding CVI.
Most children with FOXG1 wear glasses and might be considered legally blind due to their vision limitations. If your state or county has a Commission for the Blind program, you might qualify for funding for glasses and vision therapy tools.