Water! A shared love

The majority of individuals with a FOXG1 mutation have an incredible love of water! Whether it’s a bath, shower, pool or rain drops on the car window, if it’s wet, it brings splashing and shrieking. We figure there’s something about the sound, and the ability to move their bodies freely that makes it so much fun. They also have an obsession with all things stringy – cords, tubes, wires – you name it, they’ll yank it- including trying to yank their extension tubes out with the g-tube button attached!